Monday, February 25, 2013
An induction date, amazing doctors, and an update.
You know what is absolutely amazing to me? How the hardest times of our lives can also be the times with the most peace. It seems to be the biggest oxymoron, but the past few weeks have been some of the most challenging for us and yet we have felt peace and unbelievable support and we have found so many reasons to have joy.
As an update on our little baby: My doctors have had me on a super high calorie diet for the past 2 and a half weeks (about 4000 calories a day) to try and put some weight on our little guy. At our appointment on Friday there was a little growth, but nothing really significant or what we were hoping for. His heart looks as if it will be able to withstand natural labor (at least that's the plan for now) which is a blessing and so we induced at 39 weeks, or this Sunday, March 3rd. We almost delivered him this past Friday because he was consistently failing stress tests and heart monitoring, but after spending all day at the hospital he bounced back and our doctors and specialists agreed it was OK to wait one more week so long as we come in every other day for stress tests and ultrasounds.
The hard news we got was that his femur bones are under the 5% percentile for growth and that he has multiple markers for Downs Syndrome. We chose not to have the testing done for it early on in the pregnancy and any testing now would take about 2 weeks to process and we'd be delivered by then so we are choosing to wait till he's born. We've had multiple ultrasounds done with various specialists and each come back showing the same results and markers for Downs, but without a genetic test we won't be 100% positive of the diagnoses till he's born.
I've cried a lot about this. Not because I feel like Downs would be a disadvantage for our son or that we could possibly love him less, but more because I'm afraid of how the world would treat him. Either way, we really are so excited to bring another little boy home. Because of all the ultrasounds and appointments we've had about this little guy, I feel so close to him already. Being able to see his little face on the screen so many times has been a huge blessing because I feel like I've connected with him . That I know him. I didn't feel that with Rhett before he was born.
We are SO grateful for the prayers and good thoughts that you have sent our way. We really truly have felt strengthened. Thank you for being so amazing. :)
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Thoughts and Prayers from Kansas. I hope the birth goes smoothly!
ReplyDeleteThoughts and Prayers from OK.
ReplyDeleteThoughts and Prayers from NE. Blessings upon you!
ReplyDeletethinking of you, julia!!! we have friends who have i think 3 daughters now? one of them has downs and she is the apple of their eye as well as of her sisters. :) she's sweet and adorable!
ReplyDeleteI continue to keep you and your family in my prayers Julia! I know your sweet boy will be so lucky to have such a loving family!
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You continue to be in my thoughts and prayers.
ReplyDeleteJulia, Downs or not, this little boy is so loved already. He is so lucky to have you as his mom. I pray the birth goes smoothly and that you are holding him soon!
ReplyDeletePrayers from North Dakota! I have all my friends praying , too.
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Oh honey, I'm praying for you! I have a cousin with downs & he is seriously possibly the happiest person I know. The way I see it, if he does have downs, you will be so blessed to have a downs child! He will bring such light to your life! (He will if he doesn't too, of coarse) I have found that people, even children, do treat downs children & adults well the majority of the time. I feel like they don't get picked on any more than any other child or person does... possibly even less! Don't worry friend :)
ReplyDeleteI'm thinking of you.
ReplyDeleteI know it's scary to think how the world will treat this little guy one day BUT with his loving family is in his corner he already has a jump start. Wishing you a great delivery with lots of prayers. God Bless!!!
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ReplyDeleteMy two oldest children, 12 and 8, both have autism. It was a very hard pill to swallow. A year and a half of denial and mourning, to be exact. Nine years of potty-training for my oldest and about 10 years of sleepless nights as we dealt with her sleeping disorder. It has been hard. But do you know what? My Lexie is my direct link to Heaven and I have no doubt that there are angels in my home. She is the apple of my eye, and this experience has brought me so much joy! She helps me keep an eternal perspective all the time. I wouldn't change her for the world! I have no doubt that you will feel that way,too! Get ready to have Heaven's love be poured into your home!
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I am thinking of you at this time. I think the hardest party possibly is not knowing. I'll keep praying that all goes well with the birth and your baby. x
ReplyDeleteYou and your family and especially your little guy are in my prayers. Heavenly Father will guide you through this. (hug)
ReplyDeleteYour feelings are your feelings. Don't apologize for them. There will be many along the way - fear, anger, sorrow, sadness, joy, hopefulness, love. I raised a "normal" child who, by the end of high school, began a journey toward full blown schizophrenia. It's been a long, tough 10 year journey so far. I still struggle with the anger that plagues me about the unfairness that my sweet child had his life pulled out from under him. But we are stronger than we think and life is not guaranteed to be fair. I have struggled with my faith, but my son's faith has never waivered in spite of everything he suffers with. He teaches me as your son will teach you. May you have an easy, uneventful labor and delivery as you welcome you sweet baby boy.
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